…couldn’t have said it better myself.
7 Jun
HOPE ALWAYS
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Postural Orthostatic Tachycardia Syndrome
Not power of disease but the power you give disease.
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Posted by Emma on July 26, 2010 at 9:17 pm
AMEN TO THAT!! Thank you so much for sharing!
Posted by hopeful hillary on August 15, 2010 at 7:39 pm
Yes!! Youre so welcome!!
Posted by Gabi on January 19, 2012 at 12:34 am
Dear Hopeful Hillary,
I’ve recently been diagnosed with Ehlers-Danlos and associated POTS after 15 years of ill health, deteriorating quality of life and more battles with medics than I care to remember. Thank you for your Golden Girls post (and the whole of your inspiring site) and I send you every good wish.
Posted by Kirsten on January 25, 2012 at 9:59 pm
Wow! I was just diagnosed with dysautonomia, 7 months postpartum. The first neurologist that I saw was extremely rude and treated me like a child. He didn’t say this to me, but “kindly” put in my chart that my “extreme laundry list of sensations” were due to “psychosematic illness from PPD and anxiety”. This is exactly what I’m going to say to him, although he’ll probably get in writing and so will his boss
) ! Thanks for sharing!
Posted by hopeful hillary on February 20, 2012 at 3:52 am
Ugh! So sorry you had to deal with that. Glad you finally got a proper Dx tho, and good for you for staying assertive!!!