POTS Treatment Overview: Chart from Dr. Blair Grubb, M.D.

I found this online reading one of Dr. Grubb’s articles on Postural Orthostatic Tachycardia Syndrome. For those of us that can’t get in to see him (or other specialist) right away, this chart can be helpful to take to our PCP’s and/or Cardiologists/Neurologists. I’d also recommend seeing a Registered Dietitian for nutritional guidelines, and a physical therapist for a specific exercise program that caters to your health needs. Don’t try anything without a doctor’s approval first. I’ve done that, and have suffered set-backs because of it. Hope this is helpful! 🙂

POTS treatment chart

CLICK HERE TO VIEW LARGER IMAGE

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9 responses to this post.

  1. Posted by Pamelua E. B. Vaughn on December 24, 2010 at 4:52 am

    My cardiologist and I have discussed everything on this chart and have tried pharmacotherapy, increased fluid intake, and slowly increasing exercise. Unfortunately, I’ll start feeling better for a couple months, then I’m right back at square one. I have dealt with POTS symptoms since I was about 12 years old (about 16 years now), and my symptoms continue to get worse. I can no longer play with my children outside, walk around the zoo with them, or even stand to do the dishes after dinner (I last about 10 minutes before I feel I will pass out). What else is out there?

    Reply

    • Posted by Julie Kochiyama on October 28, 2011 at 5:19 am

      Have you tried IV normal saline infusions? They’ve been helping my daughter.

      Reply

      • Other than recieving IV infusions at the hospital/clinical setting, I have not. But the are known to help the majority of POTS patients, particularly more than medication. I know for some people it’s occasionally hard to get their doctor to order it and even more difficult to get their insurance to cover it. Hopefully they fix this soon.
        Best,
        H

  2. Posted by Julie Kochiyama on October 28, 2011 at 5:21 am

    I hope you’ve already found some help by now.

    Reply

  3. Posted by Henry Woodward MD on April 9, 2012 at 5:47 pm

    Exercise intolerance is very common with “POTS”. You must implement a daily exercise program that you can “do”….then slowly and progressively increase your endurance, muscle tone, cardiovascular health, and persevere. If you hit “the wall” and cant advance your program….maintain where you are for a period of time then after a few days to a couple of weeks try to increase your “time walking” for example. Or slow down to achieve your distance while it might take you a bit longer….you are still accomplisming your goals. There will be set backs but what YOU do to “WORK AROUND” these is paramount. Above all be vigilant! Your not alone…and never have been… Work with your treating physician…and ALWAYS coordinate whatever changes you want to make in your regimen with them first before implementing them as you improve muscle tone, loss weight, dont be surprised that as you “feel better”….you may need adjustments in your medications. By doing this you will advert any untold “fallout”…and be able to maintain your new regimen….which will not only demonstrate, not only to yourself which is most important, but to your loved one’s around you that there are things you can do to improve your overall gestault. Keep in mind that you should not be too hard on yourself….because we all want a cure…but until then we must make the best and most of what we have now. That is what we ourselves can do to formulate a plan…implement it…and reap the rewards that are surely to come from your positive approach to this process. Best wishes to you and your family as you embark on this new dawn…as it will come every morning.

    Reply

    • Thank you Henry for sharing this insight and for encouraging all of us. It is such a delicate balance to weight when we should or shouldn’t push ourselves in relation to physical exertion. I appreciate your comment on this and advice on how to manage this aspect of our recoveries. Best Regards, H

      Reply

  4. Posted by Karen Godden on January 22, 2013 at 7:32 am

    Hello, I have recently been diagnosed with POTS which has given me a reason for the wide range of symptoms I have been experiencing. I have a Neurologist down in Brisbane but have found her to be rude and not open for discussion. I live in Australia does anyone know of a good Nuerologist in QLD

    Reply

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