about

“Triumph is often nearest when defeat seems inescapable.” [B.C. Forbes]


Hi. I’m a writer, musician, big dreamer, deep thinker, science nerd, and … a Dysautonomia patient.

My life was very busy and active until I was diagnosed with this chronic, incurable illness.

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BUT, I AM DETERMINED TO GET BETTER.

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Here, I will be blogging about my life with a chronic illness – symptoms, experiences, advice, positivity, and encouragement in hopes of inspiring other people who struggle with chronic diseases.

Comment, e-mail me, subscribe – and I will get back to you. If you’re reading, or you can relate, I’d love to know who you are.

Thanks for stopping by. Maybe you’ll find a little bit of hope from reading Overcoming: Life with a Chronic Illness. 🙂

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“Although the world is full of suffering, it is also full of the overcoming of it.” [Helen Keller]

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“You handle disease much in the same way you handle a tiger.” [R.W. Shepherd]

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7 responses to this post.

  1. Posted by IDKmyBFFJill on January 30, 2010 at 5:32 pm

    GIRL.

    I FEEL YYEWW!!

    I had dysatuonomia as well. As soon as the pollen cleared, God granted me my prayers. MY HEALTH WAS RESTORED.

    Just keep fighting. All you gotta do is FIGHT. YOU FIGHT AND YOU FIGHT AND YOU FIGHT AND YOU FIGHT.

    You are not alone. There are many people who have this disease…. they just don’t blog it for the world to read…. pretty brave. Many people laugh at this disease, while you, you make it known as something terrible. Soon, we will get the respect we deserve, maybe even a ribbon, and a month each year to raise awareness.

    Keep it up sister. DYSATUONOMIA FO LIFE.

    Reply

    • THANK YOU!! Soo glad to hear a GOOD RECOVERY!! That definitely gives me hope!! You’re right about the fighting — WE FIGHT HARD SISTA! People dont realize the strength it takes to live with chronic diseases every day. Thank you for stopping by and for your encouragement!! hope you are HAPPY & HEALTHY! (hugs) xoxo

      Reply

  2. Posted by kelly on February 6, 2010 at 10:29 pm

    I would like to send you the story of how me and my girls have been symptom free from starting a dosage of a med. Vanderbuit autonomic researchers are currently studing it. Kelly0770@comcast.net
    Myabe it can help you. Kelly

    Reply

    • Posted by Julia on December 29, 2013 at 9:26 pm

      Kelly I will be going to vandy autonomic dys CRT in jan and would love to know about the dosage of med you are referring to! Thanks!

      Reply

  3. sure kelly! thank you for thinking of me. i would love to know about it!! my email is hopefulhillary@gmail.com SOO happy to hear you are symptom-free!!! (hugs)

    Reply

  4. We seem to have a bit in common! Following 🙂

    Reply

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